When you and a loved one's lives get turned on
their ear due to early onset dementia, everything changes.
The difficulties which arise can't be dealt with through
the same old responses; the entire relationship
shifts.
Nerves are on edge, personalities will (generally)
conflict more than ever before, and tempers are
short. Patience and calm are
easy to prescribe, but hard to maintain.
These are some of the tricks I have learned to
help make daily life easier.
Find tasks (within the person's capability range)
to do. Chores, invented tasks, or
busy work...it's all about keeping their mind and
body occupied and active.
It could be as simple as organizing recipes,
photo albums, clearing out old magazines--all
of which are also jobs that possibly reconnect
them as old associations are triggered.
These jobs give a sense of contribution and
participation to the patient, which becomes
increasingly important.
(Don't press the point when the patient expresses
frustration and inability; they are NOT the person
they were, and getting frustrated or
demanding will only worsen things. Do your grief
and denial work independent of your time with the patient.)
And of course, confronting them while
you're angry is never a good idea; they will not retain the
importance of the issue you're addressing, but the
upset will linger. Criticism is the least effective tool
with dementia patients.
Tasks are good for a sense of purpose,
accomplishment, and even connection with
the caregiver or family member.
Also, don't make a big deal out of your need
to 'take over' most or all of the household responsibilities.
Be matter of fact, very low key, even--where possible--
not even mentioning it.
If taking over the bills, make it seem like you
enjoy doing it and it's helping you out
by letting you do them. Don't ask; it just forces the issue.
Hide the bills, the checkbook; get the mail delivered to a
P.O. Box for safe-keeping if need be.
Avoid conflict wherever possible, and do so
by not making a big deal out of the changes taking place.
They already know what's going on on some level--
it's just unpalatable.
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